Tag Archives: Family

Aspergers, or why we are creating an Ameristralian zoo

So there’s something I’ve been keeping to myself for a long time. I know I have mentioned in the past that Brian’s son has a form of Aspergers, but I have never really discussed how it effects us as a family and as a couple.

For the past 10 months the Kiddo (contrary to popular belief, this is my pet name for him and I will not refer to him by his real name as he deserves as much privacy as anyone else) has been living in some form of residential facility. This is the product of what was several years of escalating levels of violence that seemed to occur at the drop of a hat. We tried numerous things – homeschooling, therapy, socialization therapy, afterschool “bridging” therapy – and every time we thought we were making progress there would be another outburst.

20130429-190741.jpg

In all the time I have known the kiddo, he had never physically attacked me. Sure, he was a teenage kid and he certainly used a lot of nasty words in my direction but he never once attacked me. Until last summer. I won’t go into details, but suffice to say that he spent a short period of time in a psychiatric facility for children, as the police that were called gave us two options – either that or jail. Neither one was quite what we were looking for, but at that point in time we had our backs against the wall.

Once he was released he headed to his grandparents house (Brian’s parents) where he was “fine” until he just wasn’t anymore. From there we had to find another emergency facility for him. While all of this is happening, mind you, we are still busting our butts trying to get his IEP sorted out and hopefully a spot in a school more suited to his needs.

20130429-190658.jpg

We also were trying to get our county to approve funding to have the Kiddo moved to our area, as while Brian’s parents don’t live that far away it’s not like we were able to see him every weekend. But this all took time, a stupid amount of time…and in that time he was once again becoming more aggressive, but this time it was (luckily) in a facility that had trained staff who were able to recognize his needs.

In the end it took us well over 6 months to organize a transfer to a program closer to our home. And now we are dealing with a facility that is focused on “re-training” the kiddo (so to speak) and also re-training us as the parents. He is in a great school that is specifically set up to teach kids on the autism spectrum and so far he seems to be doing ok. What we know changes day by day, but what we are aware of is that the Kiddo is going to need intensive services and home care for the rest of his life.

20130429-190635.jpg

But, in dealing with all of this for the last couple of years I have realized a few things.

One – Brian and I will never have more children. This may be the hardest realization I have had to make. But knowing now how much time/money/resources we have to (willingly, mind you) dedicate to the Kiddo (and he’s not even with us full time yet) I don’t see how it can be responsible of us in any way to bring anther child into this family. Not to mention that I am truly just fearful of how he may react to another member of the family. He is good with his other siblings, but he has a very tight bond with his father that I think he would consider irrevocably damaged if another child came into this house.

Two – I am stronger than I ever thought I was. To be honest, I’m not sure how strong I am, I don’t know if I will be able to weather another attack…but I know I’m strong enough to still be here and to still be advocating for the kiddos needs.

20130429-190154.jpg

Three – If there shall be no children, I shall have a personal zoo. I have warned Brian about this…so we’re good. Next Strewth-house shall be slightly bigger and there shall be another dog. And perhaps another cat…maybe a three-legged one with a pet parrot?

Had to end on a slightly silly note, right?

The state of the Strewth

Did i ever tell you about this one time when i was a step mother?

img_0097

Oh right. No i didn’t.
But i was.
I am.
And i suck at it.

I mean…it doesn’t help matters that you throw a kid who still wants his parents to get back together (oh right…that was the answer on the first lot of homework he asked me to help him with!) into a pot with a dash of attitude, a LOAD of teenage angst, a sprinkling of teen depression, a pinch of BO and a quart of some sort of mushy weird stuff that we only found out (two years later) was mild aspergers.

img_0279

For the two years that the kiddo lived with us, we hit every low and every extreme on the board. Walking on eggshells doesn’t even begin to describe how it started to feel in the house. But don’t get me wrong…it wasn’t all bad. It’s just that the extremes were off the chart. We dealt with the school system, the police, the court system, the health insurance company and even managed to navigate our way around the local county and their assistance program. Everyone we came in to contact with was very helpful, but ultimately the finger was always pointed at us. We were never doing enough. His behaviour problems were our fault. Mind you…this was all before we were finally pointed in the direction of a psychiatrist that was willing to spend more than 5 minutes with the kiddo to put together an actual diagnosis. I truly hate to think what kind of hoops someone without our support system would have to jump through in order to accomplish what we did. And thats not bragging. Thats me being completely honest and devastated that other families may go through this and not know where to turn.
img_0248

Last summer the kiddo went home to his Mom’s house in TX for a visit and ultimately decided to stay there for the time being. Luckily his mom is a stay at home mom and even though she has three other kids, she is able to dedicate more time to him during the day, that he needs. Currently he is being home schooled, which we all decided was a fantastic solution for him and his aspergers. And so far, with a few minor bumps in the road, so good.

He’ll be coming back here soon for a visit. And i would be lying if i said i wasn’t nervous….but its something that this evil stepmother will deal with :)

(Almost) Wordless Wednesday

300300_1978816079140_1505296021_31699294_137883522_n

Luckiest girl in the world – Look at my adorable in laws! Thanks Mistah Bill and Mama Marr for all your help and your amazing packing skills. I would never have wanted to do it without you! Now to plan a trip to the beach :-)

*~o_o~*Nanna Margie*~o_o~*

Happy Mothers Day Mama!

marg-3

Over the last 32 22 years you have been my solid rock, my best friend, the most awesome mother in the world and the only person who has successfully washed my mouth out with soap (shit!)

Mah Mum

It’s never easy being so far away from you (tell me again why i moved half way around the world?) and at times it is downright awful…but the one thing that makes it easier is knowing that you are only ever a phone call away (or you know…a 26 hour plane ride).

img448

You have successfully raised two of the BIGGEST kids in the entire world, with Poppy Jacks help of course (although you do need to add more notes on doors), and now peter pan and i are wrecking havoc on our own kiddos.

The two peter pans

Don’t worry – I will always make sure that anyone who manages to complete my child-rearing course knows:

  • scones are ALWAYS quick to make and quick to bake
  • the wooden spoon is a multi-multi-multi purpose tool
  • snails do NOT make good pets
  • laughter is the best medicine, but if that fails coffee and cake at the DOME will work
  • a child with chicken pox PROBABLY needs to be tightly restrained in the house to stop them running all over the neighborhood
  • a mouse in the kitchen is worth 36 in the cage
img029

I have always known that if anything was ever wrong, that i could come to you and you would be willing to help…even if you wanted to throttle the ever living snot out of me :) I may not have appreciated that as much as I should have when i was younger, but i sure do now – so thank you! Thank you! Thank you!

img447

So really, honestly and truly – thank you for being the best mum any tinkerbell could ever have. You are my favourite mum in the whole wide world and i am a very, very lucky so and so to have you!

xoxoxox

-Tink

Okay…one more photo…couldn’t resist….how far can you throw that wooden spoon?

img449

Still plodding along..

We’re still moving along with getting set up in our new home. Our days are filled with work and our evenings are packed with…unpacking :)

But mostly our lives are filled with love. I know, without a doubt in my mind, that I am truly lucky to be able to share the kind of love I do with the Wee-b. And I consider myself even more lucky to have been give the opportunity to create a home with my little family. So thankyou :) Really, truly…thankyou.

sad

Had a bit of a sad day today. I guess most people would look at what happened and just kind of shrug their shoulders and wonder why I was so upset. I will admit to being very preoccupied in the last couple of weeks, what with both work being nutso and the process of hunting for a house with the Weeb. So i really don’t know when this happened, but we went by the aspen today (where i still pay rent, but am never there) to pick up more food for the Giz. I noticed as soon as we pulled up that the pretty ground cover that was in the front (as well as some of the other plants on the other side) were missing and i pointed it out to the Weeb with a bit of a sad face.

You see, last time my parents were here they slaved over the front yard and managed to get it all devoid of weeds and then we went out together and found some pretty plants to fill the garden with. I know, i know…material things. But you have to understand, it wasn’t just about the plants, it was about the memories and the smile I would get when i would go home. I was planning on taking some cuttings when the Weeb and I moved into our new home so that I could combine memories of both my parents and my time at the Aspen.

But now its gone. I know there’s always new memories to make and honestly, if this is my biggest thing to complain about then i have it pretty damn easy. But my family is not close by. I don’t get the opportunity to see them every week/month or even year. And i truly cherish the moments i have with them…so much so that even the littlest thing (Frankenstein the vacuum!) will always stay with me. So i guess the fact that someone tore out these plants (even if it was an accident) really hurts. There is so much that has happened over the last 12 months at the aspen, but the one thing that keeps being reinforced over and over again, is how unwelcome i feel.

I’m looking forward to having my family in my new home and being able to make new, lasting memories.

The fam

twentyone-thirty

21. How did you plan to ring in 2010?
At home in Australia with my parents. We had fish n chips for dinner and went to bed early. Even Tinkerbell’s need some rest.

22. What’s something you learned about yourself?
I am a patient person, I also learnt that i have a limit to my patience. You can only promise me something so many times before i will walk away. 2009 was my year of yes, i learnt so much about myself…i am truly proud of who i am.

23. Did you keep your goals/resolutions for 2009?
I don’t recall making any specific goals or resolutions. Miss M and I were already about half way into our weight loss goal at the beginning of ’09

24. What countries or states did you visit?
Virginia, Australia, Qantas lounge in Heathrow (does that count? Hee!)

25. What would you like to have in 2010 that you lacked in 2009?
A home for me and the rest of the motley crew  :)

26. What date(s) from 2009 will remain etched upon your memory, and why?
September 2nd (xox)

27. What was your biggest achievement of the year?
My father would say me getting through it in one piece would be my biggest achievement ;)

28. What was your biggest failure?
Not saving more money.

29. What did you pine for, but never get?
Nothing…i don’t believe that i pined for much last year, the one thing i did pine for came true in the end.

30. Whose behavior merited celebration?
My parents every single year the answer to this should be Nana Margie and Poppy Jack.


photo-6 The Mo man with a mac-wig

The snow began falling yesterday around 11am, but it really didn’t start sticking until later in the afternoon. My awesome boss sent me home just before 2 and I jumped in the car to go and pick up the Wee-b.

We went back to the Aspen and picked up the naughty Giz and then headed in to Arlington to grab something to eat and check out the CD Cellar for cheap movies.

CD Cellar The CD Cellar :D

Good wine, fun times with the fam AND an episode of Ghost Hunters. Who could ask for anything more? Last year taught me many things, yet last night i learnt the most important. I am happy, content, loved and exactly where i want & need to be.

xox

aussie rules..

A nice warm 102° F in Perth today…..completely the opposite of what the family in DC is experiencing at the moment – i’m kind of curious what kind of state of shock my body will go into when i get home to the cooooold

It’s Sunday here in the future and as most shops and things are still closed on a Sunday, the parents and I decided to take a day off from family-ing and touristy-ing and just stay at home and annoy Mr Henry. Mission fairly accomplished i would say ;)

Time to pass out now

The mama and i did head into Freo yesterday to have a wander through the markets and to pop back into Didgeridoo Breath. Not much new around and is it just me or are the Freo markets getting smaller and smaller every year? So not much success with my list of stuff to take back home….but i did manage to find one bargain…

dscn2307 Ignore the face and the hair…it’s bloody hot here!

Money well spent i think…well i guess considering that Margie bought it for me, it was a definite bargain :D

Tomorrow some of my cousins are coming over to the house and then at some point next week the parents and i are going to do a tour of the Fremantle Prison which should be a blast! Also left on the list is more family time and a day in the city on Thursday. I think next time i come home, i’m going to have to do so for a hell of a lot longer…two and a bit weeks is never enough. But the next time i come home, i will also have a lot more baggage with me…is it possible that i could fit the wee-b in overhead storage?

;) I love you wee-b….just joking about the overhead storage, you can totally fit under my chair.

allo henry!

Woke up yesterday morning to news that my Grandmother had had a fall and was taken into Royal Perth Hospital. After finally getting through all the rigmarole there, dad got through to someone on the phone and got an update on her. She’s doing okay, got a bit of a sore head but they are taking good care of her at the moment and she should be home in a day or two.

In the afternoon we headed back out to the cat shelter to pick up Mr Henry. After a bit of a wait to get him and some more paperwork that had to be filled out, we had a fluffy little kitten shoved into a cat carrier ready to come home.  I don’t think i’ve ever met a kitten so full of spunk and silliness…he’s had us in stitches since we got home.

First day home Mr Henry straight out of his carrier

Success! A snooze to get some more energy to deal with us nuts.

We have had such a blast with him so far. Today I may have gotten a little silly with him, but isn’t that what kittens are for? He’s so placid and to date i don’t think his motor has stopped working….it’s all purr purr purr…you can hear him from a mile off!

Wrapped up like a burrito Baby Henry

Pants for the win! All dressed up and nowhere to go…

Yes. I am four.

Off to Mandurah

We woke up pretty early, to try and escape some of the heat, and headed up to Mandurah for the day. First stop was Aunty C’s house for some yummo food and drinks and then we packed up the cars with more food and headed on our way to her daughter Linda’s house where the rest of the Jones clan was going to meet us.

For Christmas Linda had been given the most awesome gift ever….a Highland Bull, named Fergus. He was pretty cute….for a bull ;) Apparently, given enough attention and human interaction, they can become quite tame and will begin to act more like a family dog. At one point Nana Margie managed to put almost one foot in the pen….but i am under threat of death not to post those :)

Fergus Fergus getting a bit of tucker

Fergus Nose in your face.

It was an awesome afternoon with the family…i love heading out to Linda and Larry’s place – its always one of my most favourite things to do when i come home for a visit.  And of course no visit would be complete without us terrorizing the dogs just a little bit…

Tanika, Jay and I Tanika, Jay and I

Poor old Jay….hes such a big goof of a dog and he just loves Tanika, we spent quite a while bandaging various legs and tail and then his head. He just lay there and soaked up all the attention.

Tomorrow….we get to bring Henry home!!